Lastest news

Kylee had an endoscopy last week. SHe had an appointment with her GI today. They found inflammation from Crohns and her villi are flat (whatever that means) I know what villi are but don't know the significance of being flat. Her doctor has consulted with Dr Collins up at OHSU. They feel like they need more input. Kylee hasn't really gotten any better with increased doses of Cimzia and the addition of methotrexate. At this point they are going to send all her records to the Mayo Clinic. They hope the specialist there can come up with a plan without actually seeing Kylee in person. There is a new drug that is just coming out of the trial period. We are a little hesitant as it has had some bad side effects. Right now it is waiting time.

More when we know.

Kristi