Latest Plan

Now that we are home and we have digested (yes I'm trying to be funny) all the Mayo information. Our latest plan will be as follows:

Kylee will have her G tube changed to a J tube. Probably this next week.

We have written a letter to Kaiser asking them to reconsider sending her to a naturopath.

We are hoping the naturopath will be able to help Kylee choose foods that are soothing for her gut and will not add to the inflammation already present.

Kylee has e mailed her doctor to help set up a plan to wean off the narcotics. We feel that with the j-tube and modified diet her pain will be lessened and she won't need the heavy duty medication anymore. We hope all of the above measures will help buy some time until there will be new medications out that don't have the horrible side effects of those available right now.

Kristi