Nooooooooo

Well first we apologize for not sending an update for a while. I guess when she is doing well we don't think to post anything. That said you can take no news is good news approach. Unfortunately I here making an update. :(. Kylee has continued to do very well since she started the trial med on the 19th of July. Up until her last dose 3 weeks ago. Either they gave her a placebo (which she isn't suppose to get) or the new med didn't work this time. She didn't feel better after this last dose like she has before and now the last couple of days she started crashing fast. Please pray. Also for those of you that haven't heard. Andrew has been having weird GI symptoms since summer. He saw his pediatrician and he had some lab work come back elevated. She is concerned enough that he has an appt up at Doernbecher on Wednesday. :(