Kylee was admitted to Sunnyside Kaiser hospital today. I will use medical and non-medical jargon to help describe what is going on to all readers. She has swelling in her legs, ankles, thighs and back (e.g. 4+ pitting edema in the ankles). Today she experienced the worse pain she has ever had. They admitted her because her albumin (protein) in her blood is so low that she can't keep the fluid in her blood stream. It is third spacing (moving out into her other tissue). They are concerned because if it keeps going up her body she could end up with CHF (congestive heart failure) and or PE (pulmonary edema - fluid in her lungs). Since she is 18 years old, she is considered an adult and so she isn't able to go to Doernbecher Children's hospital anymore. It was new to her to have a roommate instead of a private room where mom stays with her. They were first talking about placing another PICC line and giving her TPN again. She told them she didn't want that; that it is only a temporary fix and she just wants the 10 cm area that is ulcerated and inf lammed to be removed. The doctors said surgery is definitely an option but only after she is nutritionally stable. Her serum (blood) albumin is 1.6. Normal serum is 3.5 to 5.0. The other option they gave her was to have an NG (naso-gastric) tube placed and feed her elemental nutrition through it. I think she is leaning that direction. Final decisions will be made tomorrow. Good night.
Monday, July 28, 2008
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11 comments:
Dear Kylee
I am really glad that we could get this report but sooo sad about what you are dealing with.
Believe me, we are praying, in fact Ken is walking around praying out loud for you right now.
Lot's of love to you.
Kelly Bean
Dear Kylee,
I'm so sorry things aren't going so well again. You are always in my prayers.
Lots of Love,
Granny
Dear Kylee;
Thank you for the invite and the update. We have been praying for your health and will continue.
Remember we love you!
blessings;
craig
Kylee,
I am sorry to hear that you are back in the hospital again. I will continue to pray that the doctors find a way to give you some relief and help you to feel better.
I will keep you in my thoughts and prayers.
Julie
Hi Kylee-
Thank you for starting this blog so that we can pray more specifically for you. I am so sorry that you have to go through this. Please know that aunt Betty and I are lifting in prayer.
with love,
Uncle Gary
Kylee:
Thanks for the information. We need to see you at GFU in about one month so you need to get well. I don't understand God's purpose for this health situation but you have our prayers. I need to do some reading about serum proteins and why your albumin is so low.
Dwight Kimberly
Thanks for including me. I'll be praying. I'm so sorry, Kylee.
Hi Kylee girl,
Thinking about you today and sending you love and prayers. Hang in there, girl!
Love you,
Granny
Oh Miss Sweet Girl! Such a bummer and quite unfair. Your parents are obviously very proud of you, and it sounds like you are taking the situation firmly in hand, not just letting it all happen to you but being a part of the process and making decisions for yourself. Lots of love and prayers to you, and thank you for letting your Mama give us this information about you. I'd love for you to see Patrick soon, maybe the next time I'm down. Have Aunt Cindy give you my blog address so you can see pictures on John's nephew!
Love and prayers
Jenny (Chase) Myers
Kylee, we just read your blog and are touched by your courage and strength. Grace upon grace be poured out to you and to your family. You are deeply loved by many.
Prayerfully,
Sharon and Arnie
Kylee,
We are so glad to hear you are home. We are praying for you and hoping that everything is resolved before you move to GFU if not sooner.
Lots of love,
The Knights
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